Living with ALS is challenging. As my mobility declines, constant adaptation becomes necessary. The loss of motor skills, while the mind remains clear, is mentally difficult—it’s a constant reminder of what’s changing and what’s being lost.
In the midst of these challenges, I’ve leaned into the things I love. For years, I had wanted to digitize my extensive LP, CD, and cassette collection. This past year, I finally took on the project. It’s brought me real satisfaction. As friends and family learned what I was doing, many reached out for copies of the music. To date, I’ve digitized over 19,000 tracks. I can listen for days without hearing the same song twice.
Cars have also been a lifelong passion. Over my lifetime, I’ve had 75 different vehicles. My last personal project—a 1952 BelAir—is now being enjoyed by my nephew and his family. Another, a 1951 BelAir, went to a friend who still shares his progress with me and includes me in decisions to keep me involved. A few years ago, I also helped a friend with the restoration of two 1970 Chevy C10s. One of those trucks is now featured on the LMC Trucks website, and I continue to consult on it.
Lately, my wife and I have taken on another meaningful project—cataloguing decades’ worth of family photos. We’ve looked through thousands of images, reaching back as far as the late 1800s. It’s been a beautiful reminder of the life we’ve shared and the memories we’ve made. These projects have helped keep my mind engaged. They’ve brought purpose and have helped me manage the emotional toll of ALS.
What’s made the biggest difference, though, is the unwavering support from family and friends. Not a week goes by without a phone call or visit, and often, there are several. People have travelled long distances just to spend time with us. Their presence and kindness are deeply meaningful.
Last June, I was truly humbled at the Drayton Valley Walk Together for ALS. So many supporters came—friends, family, former coworkers I hadn’t seen in over 30 years. Teams were formed, stories were shared, and the atmosphere was filled with care and connection. It was a powerful day of reunion and support for those living with ALS.
While there is a lot of public concern about healthcare, our personal experience has been overwhelmingly positive. The ALS Clinic, the ALS Society of Alberta, Home Care, Urgent Care, and Respiratory Services—each of them has shown compassion, dedication, and care.
It’s an honour to once again serve as the Drayton Valley Walk Together for ALS Ambassador. Being part of this event helps build a stronger, more supportive community for individuals and families facing ALS. It raises vital funds for equipment, services, and research here in Alberta.
ALS has changed my path—but not my spirit. And I’m grateful for every hand that’s helped me along the way.
Please, join me on June 14 at Lions West Valley Park, as we Walk Together for ALS.