I spent over three decades working in Oil Exploration which took me all over the world. Early on in my career, I met Tatiya and have been married for 30 years now. After years of international travel and fieldwork, I eventually returned to Calgary to work locally. That’s when I began noticing changes in my strength that made it difficult to do my job.

It was in 2021 when the first signs appeared. I noticed cramping and weakness in my legs. I was an avid golfer, and I noticed that it was getting hard to walk up and down small knolls on the course. As time went on, stairs also became a challenge, and other everyday tasks like clipping my nails were frustrating.

In May 2024, I was diagnosed with ALS and I was completely overwhelmed.

One of the first major decisions Tatiya and I had to make was whether or not to stay in our home or move. We chose to stay. That meant we had to make our home safer and more accessible.

My advice for anyone newly diagnosed is to get involved with the ALS Society of Alberta as early as you can. They’ll help you get the equipment you need to stay safe and independent.

Since October 2024, they have loaned me a stair lift for my garage so I can get in and out of the house, as well as walkers that help me move around safely. They also supported us with rebates for other essential items like an EZ chair (powerlift recliner) and a personal bidet.

Looking back, I remember one close call in particular, where I almost fell on the stairs. That was a turning point. It made me realize how important it is to make timely decisions, especially about equipment. They might be difficult, but they are necessary. Especially when it comes to staying safe and maintaining my dignity and independence.

My advice is this: “Life doesn’t stop. Make the choices that keep you moving forward. Don’t hesitate.”